Episode 22

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Published on:

16th Aug 2022

Living with Cystic Fibrosis – Jess Meyrick @thelittledreameruk

Around 10,800 people in the UK have Cystic Fibrosis, which is 1 in every 2,500 babies born.

Cystic Fibrosis affects around 100,000 people in the world. 

  • Jess is a Norland Nanny who nannied for 12 years before setting off as a blogger on a travelling adventure - little did she know at the time what she would face once her precious baby was born and they received the results of the newborn heel prick test. 
  • Jess talks to us about how it felt to receive the news that her baby Ottilie had Cystic Fibrosis. 
  • She explains what this meant, from diagnosis to medication, the CF team, support for CF families and life with CF at home.  


(We recorded this podcast with Jess in March – now it is August, the weather has certainly got better!) 


Links:  Instagram - @bespokefamily / Facebook - @bespokefamily  @thelittledreameruk @cftrustuk 

Cystic Fibrosis Trust  


Our blogs: Read them here 


Bespoke Family 1:1 Parent Consultations: https://www.bespokefamily.co.uk/parent-consultations  


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About the Podcast

Newborn to Teen and Everything in Between
Your go-to for advice on how to communicate with the children in your life. Brought to you by family consultancy Bespoke Family, enabling families to thrive
Join us (Becks and Claire) for a new episode every fortnight, for accessible, light-hearted and well researched advice and guidance on the various ways we can tackle the ups and downs of life with children (and have a bit of a giggle along the way!)
Whether you’re a parent, a teacher, TA or childcare worker, or just looking to gain a better understanding of the world through a child’s eyes, we have 25 years of childcare experience to share with you. Listen for judgement free reassurance and support to help you navigate tricky conversations, challenging behaviour, complex emotions, and the general day to day pressures of raising and working with children.
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